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Researchers find six new Sjogren’s syndrome genes
T helper cell function (Photo credit: Wikipedia) Researchers find six new Sjogren’s syndrome genes. Excerpt: So far, the international team of researchers led by Sivils, called the Sjögren’s...
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Sjögren Syndrome-Associated Small Fiber – PubMed
English: Low mag. Image:Vasculitic neuropathy – plastics – intermed mag.jpg (Photo credit: Wikipedia) Sjögren Syndrome-Associated Small Fiber – PubMed Mobile. Excerpt from Abstract: “We conducted the...
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Trigger Points Tutorial
Trigger Points TutorialFiled under: Arthritis, Autoimmune, Disorders of the Spine, Dysautonomia, Ehlers Danlos Syndrome, invisible illness, Migraine and Headaches, Neurology, Sjögren's, Strategies For...
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Orphanet: portal for rare diseases
There is no disease so rare that it does not deserve attention… Orphanet: the portal for rare diseases and orphan drugs (6,760 diseases listed as of 17 November 2013). Filed under: Advocacy &...
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(no title here)
I couldn’t think of a pithy heading for this post…which isn’t much of a post, just a small update of sorts. I have things I wanted to post here on standby, haven’t read email in some time, and am...
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The River Denial
After all this time, I still occasionally talk myself into thinking Dysautonomia and it’s crappy comorbidites are a bad figmoid of my imagination, a night terror, or a narcoleptic hypnagogic...
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Reality check
People tend to say, “it’s just a rough patch, it will get better,” but it’s not, and it doesn’t. That’s just a pragmatic fact. Reality is what it is. I am on a very long downward slope, for which there...
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Cognitive Disarray
I’ve been unable to make the progress I’d hoped getting the refunds finished. What follows is an update on status of refunds, as well as an explanation. I need to download the CVS file of all the...
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Legions of Lesions
POST UPDATE: I have started a private/closed group for people suffering from anything similar to what I’ve described below (or Morgellons Disease, the closest I’ve found thus far): Mystery Skin Private...
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iMedicalApps | The leading Physician review of medical & healthcare apps
iMedicalApps | The leading Physician review of medical & healthcare apps This is a resource I like, so I thought I would share it with you all. Below is a description taken from the site about...
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Legions of Lesions (the sequel)
*SQUEAMISH ALERT* Do not continue to the photos in the ‘read more’ part of this post if you are squeamish…these photos are graphic and alarming. This post is about my continuing battle with a horrific...
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